Kaylee Lurvey may go years without saying a word, and then speak a complete sentence. Her family hopes researchers will discover ways to unlock speech and other skills in people like Kaylee.Read More
Get the latest autism updates from SPARK, including information about genes and ASD research, webinars, and personal stories from our community.
Our ‘genes’ page provides short, easy-to-understand descriptions of genes linked to autism. Under ‘research’, you’ll find the latest updates from SPARK and other autism studies. In our ‘stories’ section, families, scientists and others share their journeys. In our monthly webinars, speakers from the autism community provide useful information for families and people with autism. All are welcome–invitation links are issued in our monthly newsletter. If you have suggestions for webinar topics, please email us at firstname.lastname@example.org.
Leigh Merryday Porch, a mother of a son with autism, wants to help researchers find out why autism affects people so differently. That’s one of the reasons she joined SPARK.Read More
Dylan Robey loves insects, all of them, even the dreaded cockroach. Like many people with autism, Dylan has what researchers call a special interest, in his case, in bugs. Others might call it a passion for the unappreciated.Read More
After enrolling in SPARK, the Meiles learned that their son has a change in the POGZ gene. The diagnosis helps explain a mysterious health issue.Read More
Sandra Sermone refused to wait. She had seen her son Tony through heart surgery, a feeding tube, brain scans, countless blood tests, and medical appointments. This little boy who struggled to eat, talk, and play was getting worse. Sermone had three things: a telephone, a computer, and an inability to be discouraged. She would find an answer for what was happening to her child.Read More
Researchers have taken notice of parental stress in families of children with autism. More than a few studies report that parents of children with autism experience more stress than parents of typical-developing children and parents of children with Down Syndrome.Read More
In this webinar, Amy Keefer, Ph.D., ABPP, discusses parental stress and coping strategies in families of children with autism. This is a joint webinar with SSC@IAN (Simons Simplex Collection at the Interactive Autism Network). This webinar is 60 minutes long.Read More